After having four "episodes", "spells", nightmares I have decided to create a blog of what Jaxon does everyday. This blog is mostly for myself to track what he eats and does so that if he has more episodes, I can look for trends in his diet and activity and correlate them to his last episode.
Description of his "epsiodes"- Jaxon wakes from deep sleep screaming/crying and when you go into his room he is unresponsive to your communication with him. His right side of his face is swollen and droopy. Last up to an hour. Has happen four times. Christmas Eve 2009, Winter 2010, January 2011 and February 2011.
He has been seen by CHOP in Exton by Dr. Meehan- Pediatric neurologist twice and has had two awake EEGs. The first in Jan 2010 which came back normal and one yesterday but we do not have the results yet.
At first we thought it had to do with sugar but with the last episode he did not have anything with sugar. More to follow
Diet-
ReplyDeleteBreakfast-
Strawberries, Grapes, French Toast Sticks, Milk
Lunch-
Peaches and a Chicken Patty with milk
Dinner-
Organic Wheat Noodles with peas in an Alfredo sauce with milk
Snack-
Orange
His activity was normal-played and watched Nick JR. Played outside with sidewalk chalk and went on a wagon ride
ReplyDelete